Patients & Families


Foundation Partners

GFB ONLUS is group of families with people with beta-sarcoglycanopathy and other LGMDs. The group was created to finance research projects aimed at treating the disease.

The Jain Foundation funds basic and translational research focused on understanding and curing dysferlinopathy. The foundation has evolved into a leading player in the dysferlin field.

Kurt + Peter Foundation was formed by Kurt and Peter’s family and friends to raise money and direct it into the hands of researchers who have the best shot at developing a treatment or cure for LGMD2C.

LDMD2D Foundation

The LGMD2D Foundation is a registered 501(c)3 non-profit foundation whose mission is to expedite the development of a cure or therapy for Limb-girdle Muscular Dystrophy 2D (LGMD2D).

Our Affiliations

LGMD Foundations